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Welcome to our Blog where we will share the latest news affecting Alphas, our ongoing achievements, and events like fun activities and Zoom meetings with respiratory nurses.
 
Awareness month is over for 2021. 
We have run an amazing and successful campaign with posts to raise awareness, new members signed up and funds raised.
 
 
 
 
PIECE BY PIECE, THE ALPHA-1 LIVER  PUZZLE IS BEING SOLVED

 

 

 

We can all do our bit to solve the Alpha-1 liver puzzle. 
November is awareness Month
 
Let’s all do our bit to make everyone more aware of this genetic disease , one of the most common rare diseases, but rarely diagnosed.

 

 

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CYCLING 1000KMs for alpha-1 In March 2022 two cycling heroes rode from Melbourne to Sydney to raise awareness of Alpha-1 and raise funds for our charity. Amazing effort guys. ...

Rare Disease Awareness Day FEB 28TH 2022 A genetic disorder causing lung and liver disease, skin problems (panniculitis), and inflamation of the blood vessels (vasculititis)....