Alpha-1 Organisation Australia Inc (A1OA) is a proactive charity dedicated to supporting Australians and their families affected by alpha-1 antitrypsin deficiency (A1AD). A1AD is a genetic condition and is often considered a rare disorder, however, it is widespread in Australia with approximately one in nine people having at least one abnormal alpha-1 antitrypsin (AAT) gene. The charity works to promote the prevention and control of A1AD through public awareness raising and health professional education. Identifying and supporting those affected and advocating for treatment are key goals of the charity.
A1OA was registered as a charity on 4 June 2020. Alpha-1 Organisation Australia’s inaugural governance committee includes seven members diagnosed with A1AD who identified the need to have a charity for A1AD that is accountable to its members and advocates for treatment and a cure for A1AD.
We intend to be the primary point-of-call for all A1AD patients (alphas), their families, carers, health professionals, government and other interested parties, and to foster collaborations and partnerships to expedite our charity objectives.
Our charity involves members supporting members and community participation. Members of the public can assist in many ways. Opportunities include donating time or money, assisting with fundraising, becoming a member, acting as Patron, volunteering to serve on a sub-committee or working group or assisting with medical forums, education and events.
To compassionately provide support and advocacy for Australians with alpha-1 antitrypsin deficiency and to promote education and research that will lead to a cure.
Cure alpha-1 antitrypsin deficiency.
Research is fundamental to curing A1AD.