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BROCHURE: ALPHA-1 DEEP DIVE

This brochure contains information about the genetic disorder known as alpha-1 antitrypsin deficiency (A1AD). A1AD is a disorder, not a disease, but can cause disease in some people.

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FACT SHEET: PANNICULITIS 

Panniculitis is a very rare but treatable condition, sometimes related to A1AD. Its estimated prevalence is one in 1,000 patients with the Pi*ZZ A1AD genotype. 

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BROCHURE: A1AD OVERVIEW

A1AD is a common genetic (inherited) disorder associated with low levels of a natural protein known as Alpha-1 Antitrypsin (AAT). Low levels of AAT can cause a number of diseases. 

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BROCHURE: A1AD HEALTH ISSUES

A1AD is a complicated and sometimes challenging diagnosis. Not everyone with abnormal Alpha-1 Antitrypsin Deficiency (AAT) is affected by the deficiency. 

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BROCHURE: QUESTIONS for YOUR Dr.

You are likely to have a lot of questions following a diagnosis of Alpha-1 Antitrypsin Deficiency (A1AD). Select the questions in the attachment that best relate to you. 

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FACT SHEET: AUGMENTATION THERAPY

There is only one treatment available to protect the lungs of people with A1AD. The treatment is Alpha-1 proteinase inhibitor (also called Augmentation Therapy). 

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POSITION PAPER: GAYNOR HEADING Phd

A position paper from Gaynor Heading PhD (Med), President of Alpha-1 Organisation Australia, focusing on preventing harm and saving lives for individuals with A1AD. 

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FACT SHEET: HOME OXYGEN THERAPY

There are several types of devices that provide medical grade oxygen, all of which provide oxygen to the lungs via tubing and mask / cannula or similar facial device.

 

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Our mission is to compassionately provide support and advocacy for Australians with Alpha-1 Antitrypsin Deficiency and to promote education and research that will lead to a cure.

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